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During her years in the work-related activity group of ESA she had to cope with lengthy delays with her application, “many lost medical certificates”, a string of failed interactions with government back-to-work programmes, and being sanctioned for being too ill to show up for appointments.“I would like to carry on doing it as it suits my particular conditions, and I can stay in work, away from ESA-style benefits, but I need extra financial help – I blame the DWP for not letting me have the extra help I need.”An attempt in 2014 to claim the disability element of working tax credits – on the advice of HMRC – left her in even deeper financial trouble, after an Atos healthcare professional visited her at home 18 months later to assess her for PIP.

A DWP decision-maker concluded that she was ineligible for PIP after the retired paramedic who visited her on one of her better days – she has chronic fatigue and fibromyalgia, which are both fluctuating conditions – decided that she had “picked up a cup of tea without obvious discomfort” and “had no problems communicating”.

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